Monthly Archives: August 2016

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Recovering, LOTS of detoxing, and adventures too!

Im sorry it’s been such a delay in my posts…  My mom quickly updated to let you all know via FB that Cory and I made it out and into recovery safely!  I needed to take some time to rest, recover, and work on keeping up with the detoxing game!

I know that I’ve stressed it before…  But we began intense detoxing before coming to Germany for about three months and I know that it was very beneficial for us both, however…  Keeping up on it with all of these thousands of dead bugs needing to be expelled is incredibly important now too!!!

While here, Lucy got a pretty bad head cold and they always turn bronchial in her quickly. Then my mom got it, now Cory and I have it currently and Hayden had a small bout with a cough too. So far, Grey is in the clear as is my dad!  PTL👍

Please pray we recover from this nasty bug quickly and can continue releasing toxins at a rapid rate so we can return home healthy next week!

In the meantime, we are not wasting any precious days while here…  We are grabbing each moment and making the very most of it with each other!  Here are some pics from our weekend adventures when our hospital treatments are very limited!

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We rode the gondolas up the mountain and then had a beautiful and very steep hike up to the tippy top of Mt. Wendelstein!

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This village dates back to the 700’s😁

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We are standing on a ROMAN ROAD… Mind blown by the history here!

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That castle is above the Roman road and is now a very expensive and elite boarding school.

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You now drive through the village walls that were once where the gates hung.

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Silly kiddos… Wanted to grab the clouds!😜

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Soooooooooo steep, rugged and beautiful.

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Hanging on tight to his baby😁

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Trying to find the stairs up to the castle…

Please continue to keep us all in your prayers for health, complete healing, safety, and for those helping us back at home as well…  Corys parents are holding down our fort and our irrigation pump seized up…  Making it very difficult to water the property, water animals, and just plain keep things living in the amazing heat y’all are having back home!

Sincerely, Dani

Final Full Body Hyperthermia is Tomorrow!!!

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Cory trying out the awesome bed!😁 Man, I love him!💚

Another fast post… but we are about to hit the sheets and hope to sleep before our second and last full body hyperthermia!  I am not nearly as nervous as before, now that I know what to expect… but it is still such an extreme treatment with intense heat for 8 hours of sedation.  We will both be undergoing this starting at about 8am Germany time which is 11pm West Coast/ Bend time and we would  LOVE prayers tomorrow

Guess we're now both officially patients😁

Guess we’re now both officially patients😁

Please continue to pray for our littles to have peace and to be strong.  Their little hearts are so precious and I hate to see them nervous, stressed, or hurting.  So far, they seem quite good… but they also put on a strong face for me to help me be stronger too, so it is often hard to REALLY tell.

We bought them each a Lego set to help pass the time we are needing to spend resting… look at that mess/ fun!image

Please pray for my parents to have energy to take on three little balls of energy, and to be able to care for us both tomorrow too!

Please pray for safety all around, for Cory and I to have peace and for Cory not to blow a fuse due to not being able to eat for about 48 hours of time total… he is STARVING!!!!

We are so very grateful for your support financially, for your friendships, and most of all for your prayers each day!  We need more of all of it, and you are each so treasured!

Sincerely, Dani

A Great Day!!!

Today was an amazing day out on Lake Chimsee exploring a castle, riding on three ferries, five trains and walking a lot! Here’s some fun pics of our family time! And after we got back to our room… Fireworks started… Super great and exhausting day! Sleep tight!

Sincerely, Dani

PS…  Stinkin internet here won’t let me post any pics to the blog tonight, and I have sooooo many great ones!😁  Go look on my FB page and you’ll see them!😜

A long day…

Its been a super long day of treatments and a bit of rest too. I had to spend the night in a recovery room and there was very little sleep to be found in there, but I had a very sweet room mate from Holland that spoke English!

Doctors said that my treatment went great and that its like running a very very hot marathon for your body…  So, we are heading to bed soon!

Please pray for Cory as he has not been feeling good today at all…  Slept so much, stomach is in a lot of pain and he has been throwing up. I’m worried about him and he hasn’t started treatment yet😁

This afternoon, Cory and I took a beautiful and short walk through town…  Look at this pretty view…image

Tomorrow I just have two infusions and then the rest of the day is free…  Yippee!

My parents took the kiddos on a train adventure and ate delish food with them!image

 

We so appreciate you all following along and sharing our story, praying for us and all of your love!

Sincerely, Dani

My first hyperthermia treatment is tomorrow!

Ive been so very busy with constant IVs, detox treatments and such…  Tomorrow morning at 8am, I will go into my first full body hyperthermia treatment of the two I do here. Please pray for my nervousness to be taken away. I am emotional about it, and it’s keeping me from sleeping and enjoying life. I know without a doubt that this is the treatment that God has for us, so I will do it and be half way through after tomorrow, but I need peace. Cory needs peace. Our entire family could use extra prayers, encouragement and Gods perfect peace right now and all day tomorrow!  We are 9 hours ahead of west coast time…  So, I’ll be heading into treatment between 11:30pm- midnight in Bend.  Treatment should last about 6 hours plus admitting and recovery. It’ll seem like a long day for Cory, my parents, and kiddos here, but as soon as I’m done, someone will send out a Facebook message on my account letting everyone know how it went!

Thank you for your prayers as we kill off these nasty bugs in my body!  Doctors say this should kill them all, but we will do a second one next week just to make sure!

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Today was also our little Peanuts 6th birthday and we had a great rainy day at an indoor park, had a horse themed party and picnic-style dinner on the floor of the hotel, and ate lemon and raspberry gelato cake to celebrate our joy filled little Grey Everly!

Love you all❤️

Sincerely, Dani

Day TWO…

Here we are at the end of a very busy day TWO!  We didn’t sleep a wink last night as our hospital beds are quite hard, but the staff here is so helpful and they brought me a topper and Cory a new mattress and we are hopeful that tonight will be full of deep rest!  No rest makes me more emotional than normal… and I would really like to hold it together the best I can for the kids!  Please pray for me to continue being strong for all of us, but especially those three littles that I love so much!

My morning started with blood draws bright and early, I began my antibiotic regiment, then we snuck out for a much better breakfast with the family at the hotel across the street!!!  Yay me… I struggle with hospital meals.  Then we came back and started our tests that looked something like this:

-neurological eye testing

-metabolic picture testing… they use this in the NASA program

-a heart stress test

-life quality evaluation

Then I had a short break so we came back to the hospital room and started my IV of Selenium for the next hour… then went back up to the second floor for a detox foot bath and magnetic field treatment.

We finished this all up and left for dinner again tonight and enjoyed some delicious italian food literally next door to both the hospital and hotel… I LOVE how convenient this placement in the center of town is for all of us to maximize our time together!

Mom and Daddy took the kiddos to a super fun water park and they all soaked up the sunshine as it is supposed to start raining all day for the next few days tomorrow… they all had a great time and were worn out for naps all around!

I am going to be careful posting pictures until we are back home of some specific things… but here is a recap of our day in pics… minus treatment pictures for now!

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We love and miss you all… but are looking forward to another full day ahead and the last day we have a five year old… EVER!

P.S.  I am sooooo grateful that Cory has been able to come to each treatment with me today… helped it all feel better and less alone in it!  He’s the best and I am so richly blessed to have him!

Sincerely, Dani

1 Thessalonians 5:16-18 NLT

16 Always be joyful. 17 Never stop praying. 18 Be thankful in all circumstances, for this is God’s will for you who belong to Christ Jesus.

Day ONE of Getting Better…

I finally have internet access on my laptop and can tell you about our first day in the hospital/ Klinik!  yippee!

Yesterday, Sunday August 7th was our check-in day.  We had a very hard time waking up in time for breakfast at the hotel, so Cory went and brought us all food to our room.  Thanks Babes… this 9 hour time difference has been rough on us all.  We checked into our hospital room at noon and asked when the Doctor would be by for our initial chat.  We didn’t have to be back until 5pm, so we took the kiddos to the park behind the hospital and found a fun mini golf place too!  We played the Spiel golf which is like a cross between pool and mini golf.  The park is beautiful and we soaked up all the time we could as a family!  We then went back to the hotel to rest and re-pack Cory and my belongings and arrived at the Klinik again at 5pm.

We met a wonderfully kind doctor who filled us in on what these two weeks will look like while here, she set an IV line in my arm just in case I had a seizure again.  We were then able to go back to the hotel to have dinner with my parents and kiddos… this was a surprise to us, as we thought we would have to stay here the entire time.  We said goodnight after a later dinner and unpacked our bags at about 10pm and then Cory started working for the night.  The night nurse came in to take my temperature and to give me Monday’s schedule.

Here are some pics from our fun at the park, and what our room looks like…

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Thank you sooooooooo much for your continued prayers for all 7 of us!  We need them and feel God making ways and going before us in the little things for sure!

Sincerely, Dani

Philippians 4:4-9 NKJV

Rejoice in the Lord always. Again I will say, rejoice!

Let your gentleness be known to all men. The Lord is at hand.

Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus.

Finally, brethren, whatever things are true, whatever things are noble, whatever things are just, whatever things are pure, whatever things are lovely, whatever things are of good report, if there is any virtue and if there is anything praiseworthy—meditate on these things. The things which you learned and received and heard and saw in me, these do, and the God of peace will be with you.

Safe and Sound!

Heading to our first flight of the morning...  Early!

Heading to our first flight of the morning… Early!

Breakfast before boarding...

Breakfast before boarding…

Washington DC...  Here we come!

Washington DC… Here we come!

Getting our cars!

Getting our cars!

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First stamps in our passports😎

We are here safe and sound. We are incredibly tired and accidentally fell to sleep very very soundly before we could post an update! Grabbing quick Italian food from around the corner now… It’s 9:30 here. Then going back to sleep for the night. We hope to wake rested tomorrow and have a day of exploring this quaint, little and beautiful village before Cory and I check into the hospital.

Please pray:

Rest so we can get acquainted with this time zone well before treatments.

My emotions as I check in tomorrow and can’t be with my kiddos as much as I like to.

Hayden. Lucy, and Grey to be filled with joy and have all worries lifted off their little hearts.

Energy for my parents while having three kiddos for two weeks.

Safety for their adventures.

Fun times creating memories for ALL!

Healing in Cory and my bodies.

Doctors hands to be guided by Gods wisdom.

PRAISES:

Safe flights

Safe travels to the village

Italian food around the corner

Beautiful, clean and comfy hotel and beds

We found a Starbucks in Munich😜

We are all 7 together!!!

LOVE YOU ALL!

Sincerely, Dani

Kaffe

Kaffe

I've trained her well...  Lol

I’ve trained her well… Lol

Grey found the boot buffer in the hotel lobby…  She’s hooked and has the shiniest sandals around😂

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It’s that day…

Its that day.  The one we’ve been counting down to for a couple months now. The one that we’ve prepared so intensely for. The very day that we’ve anticipated getting here so that we can begin this journey of killing this disease off and regaining health for Cory and myself and our three kiddos. It has seemed like it took so long to get here and yet it snuck up on us.

So, we’re off…  We’re happy….  We’re together…  We have great hope…  And we have a long journey/adventure ahead of us!

Yesterday we had our FINAL pre-Germany IVs and then headed home to finish up packing and say our goodbyes to family and some special friends. Several of them stopped to pray with us before leaving and we definitely felt the LOVE!image

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Please continue to pray for us, pray for safe flights tomorrow, for safe drives today and tomorrow, for all the last minute details to fall into place, for everyone to stay healthy and not catch any bugs on the planes, and for no pain episodes!

Ill be blogging as much as I can to document this treatment and our trip!  This will be he best way to keep in touch and up to date on how everything is going!

We love you all and are so blessed by your care and provision for our family!

Sincerely, Dani

Basically… my sis made me cry! LOL

Guys… I am a MESS.  I am working on getting all my pills, vitamins, and herbals packed up and portioned out for the flights and our time in the hospital.  I am packing snacks for the drive up to Seattle and the 13 hours of flights we will have.  I was taking some time to write a few notes to friends and family that I wanted to hand them to tomorrow, and I just lost it.  Yes, I know the day has been a long one and I am not sleeping at night again… but it’s not just the end of a LONGGGGG doctor filled day.  I am emotional as tomorrow is our last day at home.  We are stepping out into this first of many phases of treatment this Thursday.  We don’t have all the answers.  We haven’t a clue what Germany even looks like, if we will have decent internet so Cory can continue working, what we will do for the kiddos meals, and on and on and on!  I am of course overwhelmed… however, I am even more so overwhelmed by the love that has been poured out towards us by so many of you.  People committing to pray for our family, safety, and healing, people helping this first phase financially, and people just saying that you’re there and reading along.

I have to point out one person though… Cory and my family has ALL jumped on this journey and have helped from the very beginning with everything from brainstorming to meals to finances and they all play such an important part in the big picture and we love each of them!  But, tonight my sister here in Bend is on my heart.  I was writing her a thank you note, which turned into an “I’m so blessed God picked me to get you as my sister” note.  Rachelle has been here tangibly every step of the way.  I have called her crying.  She is there for a hug.  She has Grey for us even right this second.  Rachelle and her hubby made our video, worked on the story with my other beautiful sis, they sacrificed countless hours filming, editing, and just responding to emails.  She is working on future fundraising efforts… basically, she is AMAZING, and I am blessed she’s my sister!  Thank you sis for your unconditional love, for your fierceness in fighting for my families health, for your hugs, shoulders to cry on, your forever friendship, for loving on my kiddos as if they were your own, and being my voice when I can’t find my own.  I LOVE YOU more than I can say!

Sincerely, Dani

This is seriously the BEST pic I could find of Rachelle and I tonight… we are going to have to start taking more sister pics ASAP!

This is seriously the BEST pic I could find of Rachelle and I tonight… we are going to have to start taking more sister pics ASAP!