Already in week five of this intense treatment down here in Puerto Vallarta, Mexico and I’ve yet to have a spare moment to write.
We are doing as well as we can, we’re at the clinic at 8:30ish each morning and some days we don’t leave until 8pm at night. Other days we have a short break between the majority of treatments that last most of the day and then we come back for He last two that have to be administered later in the evening apart from the earlier doses.
Ive received four red cell exchanges and I’m now officially about half Mexican, I’ve received two plasma transfusions and I still have another plasmapheresis and red cell exchange to do next week.
Our days are long and full…  we’ve had countless tests ordered and run and we’ve confirmed diseases we knew were present and found new ones as well😰.
I received my central port and at the same time I was under anesthesia we asked to have my bone marrow biopsied.  We now know that while my blood shows no signs of Lyme disease (since Germany)…  I have a very rare lyme infection in my bone marrow. We’re aorking hard with our amazing doctor here to irradicate it as well as the Babesia and Bartonella, an EBV virus, and my MRI today is showing that my pain is not due to infection inflammation, but rather two discs that are protruding and will need surgery. I also received my IGG immune system results and I’m so immune compromised that I’ll be needing at least six IV IG treatments and possibly ongoing monthly. These are approximately $20,000.00 each and would be a monthly expense.
All of this info and then the financial stress, emotional stresses and being apart as a family is making it hard for me to breathe today…  cory is by my side each and every moment of my days and nights and is seriously a gift and blessing I am beyond grateful for and I’m just not sure how he hasn’t caved under all this pressure yet.
Some of this news is new as of today, some yesterday and we honestly haven’t had time to really pray, process, or think through the details of it all yet. It’s wonderful to finally be receiving answers and taken seriously and yet; this is BIG and heavy stuff and we need time to figure things out.
Thank you for your prayers…  please don’t stop!
Ill attach our fundraising site to this post again and we are soooooo grateful for any and all of your help financially…  this just keeps growing and we still have yet to treat our kiddos😬.
click here to donate
Praises to a Great and Mighty God for leading us here this far! Â We are in the best hands we could be in for all of this.
Praises for parents that are able to be with or three kiddos and love on them for us!
We love you all and we will continue posting little pieces of our journey on instagram and Facebook in between blog posts, so make sure to find me there if you want the little bits on days that I can’t blog😜!
Live IT Out,
Dani and Cory too!
