Just when you think you have a leg up on Babesia… it reminds you that there’s no stopping it’s disease. While we’ve been traveling for the past almost 20 days now, I’ve had a lot of really good days and then I’ve also had some pretty rough ones. We’ve been super hopeful as has our doctor that my ferretin (a protein in my iron), would maintain its levels since all my vitamins, minerals, electrolytes, mitochondria, and all my blood and oxygen levels were finally back to where a body’s are supposed to be. However, babesiosis only feeds on ferretin and we HAVE to figure out how to kill them so that my body can continue to maintain crucial levels of hemaglobin, hematocrit, platelets, and of course ferretin. My recent labs show that Babesia is extremely active as my ferretin levels are rapidly dropping again. We were working so hard to kill them from November until mid May when I almost didn’t make it on May 19th. Since then, we’ve had to take a break on the “kill” and have had to be in a “building” phase so that I can survive.
So, where we’re at now… I’m sitting in the truck while Cory and the kiddos are exploring Rocky Mountain National Park. It’s only 43* outside, and even bundled up like I am… it’s too much for me. This view is amazing and we’ve been listening to bull elk send off their bugles, watching all the mommas and their babies, and just enjoying seeing all of Gods great creation around us! I am continually researching Babesiosis and trying to find some better ways to go about killing it off before it wins. We are all praying for help and healing. We are traveling, exploring, and taking in all of these amazing creations!
We were in South Dakota last week for five nights and saw Mt Rushmore, Crazy Horse, Badlands National Park, Minuteman Missles, Windcaves National Park, and the Needles Highway in gorgeous Custer State Park. We have seen sooooo many elk, antelope, tons of buffalo, deer, thousands of prairie dogs, an eagle, and more.
Colorado was a special stop we made to see my Aunt Lisa, Uncle Ken, and cousins, Zach, Logan, (we really really wanted to see Korey Anna, Brittany and Boots and their baby who’s already overdue a week😬. (Come on baby! 👶)… but we had to escape the early cold Colorado is having. We made sure to go to Rocky Mountain National Park quickly before we head off to Kansas!
We sure love our family near and far and we’re enjoying seeing as many as we can along this adventure!
Enjoy all these pics… see ya in Kansas!❤️
….. and we’re off! It’s been a while and soooooo very much has happened. Unfortunately I’ve allowed some people’s negative comments to get further into my head than I normally do. Though I know the truth and don’t answer to anyone else, at times the thoughtless actions of others sting… it’s a great reminder to think before you speak and pray before you act, so I’m working on doing better in both those areas personally.
Grey finished up her hula lessons for now and she hopes to continue them again too! As for doctors appts, I finished up the treatment plan I was on and we are enjoying this 4-6 month stint that I’m not supposed to be needing medical attention.
We are finally as of today, September 13, 2017; done with all the work of getting us ready, and we are on our way to Glacier National Park for these next three nights!!! Haydens 14th birthday is Friday and we will spend it there exploring and hiking and doing who knows what while we soak up Gpds beauty all around us… we’re hoping the smoke can clear and we can still enjoy this park to its fullest!
I, too have been struggling. May 19th I didn’t think I’d make it through the night. I had alarming lab results and was plummeting faster than I knew was possible. Prayer chains started and texts went out that night. A dear friend found a clinic that looked promising and I committed to calling first thing in the morning. Every clinic I had called said that the wait would be at least 8-12 weeks just to be seen and I didn’t have time on my side. I called this last doctor and shared my lab results with the lady who answered the phone… she literally said “Sweetie, you cannot survive like that… come in right now.” Tears streaming down my face, I agreed and still in shock; Cory and I hopped in the car and ran to see this new doctor. He immediately got to work and I’ve been making positive strides each day. It’s a slow and steady battle, but one we’re having to take on every day to keep me alive and able to fight this disease head on.
Grey is hoping to start hula soon… she’s all dressed for the part!
