I’ve been struggling to write out my thoughts, and explain how things are going these days because it’s just been so hard. I want some of each post to be encouraging and to share the hope that I have amidst the troubles… but the truth is that there are lots of things going on in and on my body that just aren’t comfy, pretty, or ideal. But the other part of the truth is that Jesus knows about it all. He is my ONLY hope and I know He has perfect plans with all of this crazy that is going on!!!
Here’s the brutal, honest yuck in life right now:
I’m frustrated with my body right now. My weight is climbing up so fast. I’m frustrated with life and the fact that we continue having to move, uproot our family from family and friends. Yank our kiddos away from youthgroup, sports, their normal. We had to leave our ranch in Bend, leave Hawaii… all because of my health. I’m weary from constantly having to start over, pack up and begin again. I’m frustrated with the body that my hubby has to go to bed with and the wife he has to wake up each morning without. I’m angry with doctors for speaking lies to me for years. I’m angry that for 25 years there were NO answers and that has caused permanent brain damage. I’m angry that my hair is falling out and hasn’t grown for over a decade. I’m angry my face has breakouts all over it. I am frustrated I can’t sleep and I have zero energy. I haven’t been allowed to work out for the last three years, and now that I can… I’m soooo out of shape and don’t know where to start.
I’m overwhelmed.
I feel hopeless.
I’m weary.
I’m sad.
I’m frustrated.
I am so thankful for the hope I have in a living Savior. I’m hanging on the words of this song along with others each day… ready for my miracle and waiting expectantly for what God is still doing in our family while we “Live It Out” daily in the journey He has allowed us to walk through… His Beauty FULL mess!
XO, Dani
I just hate sickness and all that you are battling. Your honesty is so brave and your love for Jesus through this storm is inspiring. You need a miracle in your body, and rest for your soul. Prayers for small victory’s and ultimate healing in Jesus name.
Even though I don’t know you, I feel I do after receiving your email updates. I have a sister that is battling this horrible disease and can totally relate with all you say. ( I’m hoping we can get her into a homeopathic Docter next. ). Praying for you and your family and that this awful nightmare will come to an end.
Connie.
I don’t know you but saw another Facebook friend comment so I read your post. It sounds like you’ve been through the ringer with doctors and that’s super frustrating! I don’t know if you’ve tried a naturopath? I ask because many of your symptoms are ones I have which are consistent with a thyroid disorder. I have Hashimotos (or hypothyroidism) which is an under active thyroid as well as leaky gut which is a norm with autoimmune disorders. Many doctors don’t run the right thyroid tests to catch thyroid disorders, but a naturopath will. I actually suggest a Naturopathic MD as you get all the bases covered. I also had to take gluten, dairy and soy out of my diet as those are big no-no’s (especially gluten) and may be where the acne, hair-loss, fatigue, brain fog and overall joint and muscle discomfort come from (that’s where mine do at least). You may already know all of this, but feeling like this sucks and I try to point people in the right direction when I can. Praying you get answers!
I hate that you are still struggling SO much with so many things!! I met someone named Tammy Konneker last October who also struggled with Lymes and its coinfections. After trying those supplements you tried a bit a while back, she has her life back. She is thriving. I know you’ve tried TONS AND TONS of things….but these supplements have helped her, and nkw so many of her friends with Lymes too. I mean it wasn’t a quick or easy process but it helped when she was consistent and didn’t quit. Maybe they could help you too!?