Its that day. The one we’ve been counting down to for a couple months now. The one that we’ve prepared so intensely for. The very day that we’ve anticipated getting here so that we can begin this journey of killing this disease off and regaining health for Cory and myself and our three kiddos. It has seemed like it took so long to get here and yet it snuck up on us.
So, we’re off… We’re happy…. We’re together… We have great hope… And we have a long journey/adventure ahead of us!
Yesterday we had our FINAL pre-Germany IVs and then headed home to finish up packing and say our goodbyes to family and some special friends. Several of them stopped to pray with us before leaving and we definitely felt the LOVE!
Please continue to pray for us, pray for safe flights tomorrow, for safe drives today and tomorrow, for all the last minute details to fall into place, for everyone to stay healthy and not catch any bugs on the planes, and for no pain episodes!
Ill be blogging as much as I can to document this treatment and our trip! This will be he best way to keep in touch and up to date on how everything is going!
We love you all and are so blessed by your care and provision for our family!
I’ve been having some hard days and nights lately, which is my only excuse for not blogging. I have been hit with crazy emotional struggles, and on Monday, just spent all parts of my day crying randomly. I don’t’ have a specific reason for the tears, just a lot of smaller things lumped into one big “cry-fest” I guess. The kiddos are struggling being alone so much, I am worn out by all the doctors appointments each day of each week, Cory is worn out by his IV’s as well, and the stresses financially seem too much to bear right now. Life is pulling at all corners and we are feeling so-not-good at anything being spread so very thin. However, we are hanging in here and today is a new day… one where I have scratched so many items off my ever-growing To-Do List, we each had a successful set of IV’s, I spent time watching the kiddos swim and giggle in the hot sunshine, and Cory is trying his darndest to work really hard!
Thank you to each of you who has helped with dinners… we are sooooooo very blessed by the food! Thank you to everyone who has shared our story with friends, family, TV stations, newspapers, etc… we are raising awareness and hundreds of thousands of Lyme patients just within the USA are going to reap the benefits of your efforts. Thank you so much for the financial help… we have so far to go, but every selfless gift both big and small is a massive help in this battle we’re facing! We are only 9 days away from flying out and we have so much yet to do… please pray for safety- driving, flying, traveling, focus for Cory working, ease of cleaning the house and getting packed up, strength for each day for all five of us, and for the finances to get the treatment we all desperately need!
Were trying to work hard around the property today so that we don’t leave for Germany for a month and return to all ten acres being taken over by weeds and it looking like a jungle… While I was able to pull weeds for only about 10 min I was struggling with fear. Fear of taking our whole family to a foreign country and exposing everyone to harm. Fear of the world in which we live in and the unknowns that present themselves daily. Fear of health. Fear of… You name it! I had to quickly reel my thoughts in and remember that our God, who made Heaven and Earth… Made everything in it… He is soooooo much bigger than all of this. I can give Him my worries and fears, He can hold them with just his pinky finger if I’ll let it all go! That’s the key for me at least… Letting it go. Not picking it back up again and again, but actually leaving it at His feet! He’s got all of this. He has our marriage. He has my kiddos. He has our travel plans next month. He has our safety. He has the doctors hands. He can handle it ALL!
Holding onto this simple truth… I hope you are too!
Sincerely, Dani
And because I’m having to take it easy today… I’m extremely weak and fatigued… Look at the gorgeous and fun views I’m getting to take in… Love each of them so much!
It’s been a longgggg and successful week of doctors appointments and IV treatments for both of us. I had 6 total IV appointments and a doctors appointment and Cory had an appointment and two IV appointments. We’re absolutely wiped out, but everything went well and for that we are so very thankful!
I wanted to share tonight quickly about our Doctor here in town. I have had several hundred people ask where we are receiving treatment and how you could schedule a visit… I wanted to make sure it was ok to share that info first😁 I have the go ahead, so here it is:
We feel crazy blessed and insanely thankful to have found Dr. Payson Flattery! He is the Director at the Cebter for Integrative Medicine off of Norton Avenue here in Bend. Dr. Flattery is the most open minded, smart, investigator, and caring man we’ve ever found in the medical community… And we’ve been looking for a VERY long time. He’s human and we all make mistakes at times, but Cory and I both feel like he has been used in huge ways already in our health. He has finally properly diagnosed, began intensive and yet gentle treatment immediately. He is not offended to support the Germany Kliniks protocols, and he had become a welcome and friendly face to see each day at his clinic! We are so thankful for him and his incredible team… Each one of them: Mary, Wendy, Cindy (they each keep the office running and greet us with smiles!), Kaitlyn (she has to set each IV!), Joanna (the gentle and sweet colonic lady!), and the Doc himself! If you’re looking for a great office with a warm staff and a doctor who will seek answers without giving up… Give them a call!
Now, I’m going to go snuggle with my handsome hubs and call it a night!
Countdown to Germany is happening so fast… Help us anyway you can!
Keep fighting for answers! Keep sharing! Keep PRAYING!
I’m sooooo tired, so I’ll make this short tonight. Cory and I were at the doctor shortly after 8 am today. Cory started his IV therapy today to prepare for Germany with PTC and Glutathione. His IVs went well, but it was so hard to see him start this battle with me… You know how you’d take all the hurt away from your loved ones if you could? Well, in this case I’ve given it all to them instead. 😩 I cannot go back in time. I can’t dwell in the past. And I cannot beat myself up anymore… Now is the time to move on and count blessings, so that’s where I’m trying to stay each moment of each and every day!
I began my morning with Neuro Prolotherapy. Another first for me today, and a welcomed one in hopes of eliminating my constant head, neck and shoulder pain. The doctor injected about a dozen sites with dextrose… I could honestly feel some relief instantly. My pain is not gone, but it is a couple levels lower up there… And I’ll take that as I’ve had my migraine for about 11 weeks now without relief. I also started high dose vitamin c infusions today which after we finally gave up on getting my veins to cooperate for the catheter, took about 1 1/2 hours to receive. We had to forego the catheter again today as my veins collapsed three times again and I’m quite bruised for the day.
Im having a better day than yesterday for sure, and I’m soooooo thankful! Thank you for your prayers today, I really felt them!
Unfortunately, Cory has not been feeling so well… Poor guy has been struggling with severe brain fog, and just all over feeling awful. He ended his day by coming down with one of his horrible migraines that he can get from time to time. He’s been in bed since early evening and in so much pain. Please pray that this passes and doesn’t keep him up all night.
I head back to the doctor tomorrow morning for more IVs and then for a colonic early afternoon. We will also try to place the catheter again tomorrow…
They looked happy here though… We snuck out quickly and got some birthday gift ideas for little Grey Everly who will turn 6 in Germany! Silly kiddos!❤️
Special prayer request for today: kiddos need to hear some good news soon. Maybe see mom and daddy feeling good, less stressed, and able to play with them for a bit… Even just a short time! They have not complained, but I’m gone a lot now and they are spending so much time alone and I can see the worry on all three of their faces at times.
Sure love each of you! Thank you for your prayers, support, and shares! One thing I know… God is good all the time! ALL the time!
Psalm 27:13-14(NIV)
13 I remain confident of this:
I will see the goodness of the Lord
in the land of the living.
14 Wait for the Lord;
be strong and take heart
and wait for the Lord.
Tonight was a really really hard one. We made it through, but the pain overtook my body and I couldn’t handle the pain. Cory and the kiddos said they counted 12 times that I passed out and stopped breathing when the intense pain spiked. We are struggling. The kids are fearful yet strong. Cory is worn out yet loving. I hurt still, but I know that God is holding us all and carrying me through as I’m not able to walk it on my own…
Please, please pray.
Sincerely, Dani
Deuteronomy 31:8
“The Lord himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.”
I didn’t post yesterday, but yet so much has happened. Yesterday, I started my Heavy Metals Testing and Treatment. This is supposed to onset 48 hours of flu like symptoms… but I have not felt sick like that, only severely fatigued and weak. I also tested to see how I would handle high dose Vitamin C which I am supposed to begin this next week.
Cory’s initial test results came in and we have confirmation that he too has Chronic Lyme Disease. He will begin intensive treatment Monday and will be at the doctor every day like me. We knew that Lyme could be sexually transmitted and transmitted in utero as well. We were very aware that it was quite possible that Cory and all three kiddos have Lyme and co-infections… but that was a hard afternoon for me having finality that indeed I had given this to my best friend and kiddos. Thank God we are on the road to healing… it honestly cannot get here quickly enough and yet we have so much pre-Germany treatment to accomplish before we go too!
As soon as I got in the car to head home from the Doctors office, our local news station called me and asked if they could come out to our home and interview our family. As much as I don’t like being in front of a video camera… this is exciting and we pray that it sheds light on this awful disease, opens physicians eyes as well as the general public that Lyme IS on the West Coast, it is here in Bend, and it can be anywhere! We filmed yesterday evening and the story will air tonight, Friday July 15th at both 10pm and 11pm on Z21. You can also find it after it airs on their website: http://www.ktvz.com (Have grace on me… I was so very nervous!)
And then………. the celebrating began! Cory and I celebrated our 14th wedding anniversary yesterday! I was so thankful that I didn’t feel flu-ish so we could go out to dinner while my parents watched the kiddos! Cory and I will never forget this zany, crazy day celebrating us
Today has been a day off of me being at doctors, and I welcomed that! I took the kiddos to the dentist and then we went and spent some of the afternoon with their great aunts and great grandma. We came home in time to finish off the day with a good swim and soaked up the last of the day’s sunshine!
Soooooo many people have reached out and let us know they are praying alongside us, you have shared our story, and many have helped financially. All we can say is THANK YOU! We need the help and you are each such a blessing! Please help us share our fundraising page… Germany is around the corner!
Once again, it has been a while since my last post here for many reasons. There have been some really, crazy hard days and nights filled with much pain, we are pressing through the hard times and savoring the good times. We had Lucy’s 11th birthday as well as Cory’s birthday yesterday, took a spontaneous camping trip for one night at a local lake and enjoyed the Independence Day with family and friends after starting it off with a full morning of being at the dentist. We have fought fiercely for good days… we need them more than I can express right now after having such a rough couple weeks.
Along with some of the fun activities we have had, we have also done TONS of research, asked so many questions of doctors, and have settled on a course of action that will take our entire family as well as my parents to Germany on August 5th. Cory and I will check into the St. George Klinik in Bad Ailbing, Germany on August 7th through at least the 21st. My parents will be taking care of our kiddos while we are in the hospital receiving treatment to irradiate the Lyme Bacteria from our bodies. This hospital is the only place in the world that offers this specific Extreme Hyperthermia treatment and they only treat Lyme Disease and Cancer patients there, both with great success. We will also be undergoing extensive detoxing treatments, testing, and other things that are yet to be decided until our arrival. Though we are very, very hopeful that this treatment will get here and be over with so that we can move onto the post treatment protocol and be one giant step closer to being able to do all the things we dream of doing as a family… I am filled with nerves, worries of the unknowns, and all the travel logistics for our family. I am of course nervous of being put under general anesthesia for seven hours two times for each of Cory and myself while our bodies will be heated up internally to such high temperatures that it will kill the disease causing bacteria in our bodies. We know that this treatment is what we are supposed to do, but doing it is still filled with unknowns and fears.
Please pray for our family in this soon- coming journey, Please pray for peace, wisdom, safety, and many, many, many good days ahead! Please pray for finances to be in place, please pray for our kiddos to feel safe and secure as their parents are starting to have daily doctors appointments and that is unsettling to them. Please pray for overall healing in all five of our bodies and strength and health for the five of us and my parents as well.
I know that where He leads us, He will be with us.
I will be journaling here on my blog this 30 day count down until treatment starts next month, so please read along, share and pray when you think of us.
These days are tough… but the nights are even more so. Last night was yet another one that this disease hi-jacked. The pain overtakes me, the convulsions begin, I lose the ability to hold my head up, my arms go limp, and my legs can bear no weight, tears start to flow involuntarily, I pass out half a dozen times from the sheer pain, and utter fear sets in.
Thankfully, last night I was able to get Grey all tucked in moments before all the pain started. Cory was outside having an airsoft war in the dark with Hayden and Lucy was on the couch, also nursing a migraine when all I could do was hit the couch and focus on breathing through the intense pain that hit like a brick wall.
Moments later Cory and the two bigs were by my side talking me through my breathing, offering iced tea, rubbing oils on my feet and head, rubbing my neck and back, and most importantly; praying… asking God to take it all away.
As I sit here today writing about last night, I’m reminded of two things: First, I made it through those awful moments last night when I doubted it was possible. He saw me through… gave me strength, and I know my Great God carried me through those moments that were too much for me in my own strength to get through. Secondly, in these horrendous times when it grieves my heart sooooo much that my kiddos have to know so much hurt, pain, and fearful times in this life. I see how strong they are each becoming, How much they rely on their Savior to get them through each minute, and I can truly say that in listening to my son beg God to heal his momma most recently last night… we are raising Mighty Warriors for the Lord! This is not a battle for the weak at heart, it takes courage, faith and trust in God’s promises. He promises a HOPE, and a FUTURE, when we call upon Him, seek Him, and press in. I have recently found my kids together in one of their rooms reading the Bible, explaining how it applies to their lives, how faith is so important to each of them, and I am stopped in my tracks to listen from outside and stand in awe of how only God can take such ashes and turn it into such glorifying beauty for Him!
My heart in sharing all of this is to encourage you… in each trial… do NOT lose heart. You have a God who is bigger, much bigger than all of it! He has these incredible plans for you, your family, He is going to use you and your trial if you submit it to Him. He will take your family through the fire and refine your kids, your marriage, your whole self. It will be hard, trying, and you’ll have your doubts for sure. But trust in the ONE who created you, HE CREATED YOU… just think about that. You may not know what He is doing… but He does! You may not know what His plans for your family are… but He does! I am hanging onto Him at every turn, in each tear that falls, in every twitch, every heart issue, every time I cannot form words and the discouragement doubles up… I choose to hang onto His plans, His will, His ultimate peace which passes all my understanding!
Hang in there dear friends!
Sincerely, dani
The Lord is a refuge for the oppressed, a stronghold in times of trouble. Those who know your name trust in you, for you, Lord, have never forsaken those who seek you.
Psalm 9:9-10 NIV
I have no greater joy than to hear that my children walk in truth.
3 John 1:4 KJV
“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.”
The start of my day is about the best part… my sweet hubs wakes me up with my special coffee drink and my first pills at 9am. These intense bio film busters along with lots of water begin doing the days’ work on the “cystic” forms of spirochetes. Cysts/ our cells have a bio film encasing each one and unless you can break this down any treatment to kill off these “bugs” is absolutely useless. I also pulse on and off every five days Artemesinin for the Babesia which is plaguing my body and feeding on my ferretin (a protein in my iron) ((another blog entry all together!))
After I take these, I usually very slowly start to wake up. Though this does not sound early to most people… this is about two hours earlier than what I was able to do about a month ago. I don’t sleep sometimes at all at night, so it is a job to move at all most mornings. This last week after Cory woke me up, I had NO movement in my right arm at all for over two hours, and there are almost new issues each and every day that I am learning are these awful creatures attacking their body part of choice for the day or hour.
One hour after swallowing the “busters” I take my “killer” drops in a small amount of water and pray that it goes to town killing off the spirochetes, if not at least chasing them into their other form and weakening them at least a little… Here is a brief description of what a spirochete looks like and how it hides, changes:
“Borrelia Burgdorferi (Lyme) is capable of transforming into a cyst when it feels its life is threatened. While in cyst form, Borrelia obtains immunity from antibiotics, its host’s immune system, and temperature and PH variations. It can also lower its metabolic rate while in cyst form in order to ward off starvation. When conditions within its host become more favorable, it will transform back into its spirochetal form. A spirochete can also have the added protection of a biofilm if it morphs into a cyst while inside a biofilm.
Don’t confuse the cyst form of Borrelia for skin cysts that are visible to the naked eye. Borrelia Burgdorferi in cyst form exists on a microscopic level and can only be seen with a microscope.”
cyst with biofilm
picture of cyst
spirochete
spirochete
Another 15 minutes later I swallow some powerful detox drops in a small amount of water, followed another 15 minutes by bentonite clay, psyllium husk powder pills, a natural thyroid supplement, DHEA supplement, brain support, and my AM Isagenix pills, Ionix shot, a LARGE amount of water, and then about two hours after being woken up, I get to drink my AM protein shake! I then follow my liquid breakfast with 24 ounces of my greens with some replenish (again… some of my favorite Isagenix products!). The final part of my morning routine is to follow all of that with at least 24 oz. of water!
I have another shake about 1-2pm for lunch, followed by another batch of greens and replenish, another big water and then I am free until after dinner… FREEDOM!
We eat a very clean and healthy meal for dinner free of any dairy, gluten, corn, or sugar, and minimal fruits if any at all. This is usually a very weak time of the day for me… but one that I love to sit with my four favorite people and enjoy a recap of our days!!!
Dinner is followed an hour later with basically repeating my morning routine, but here it is just for the record:
2 more “biofilm busters”
40 more drops of the “killer” drops
10 more drops of “detox”
Bentonite Clay in water
5- Psyllium Husk pills
PM Isa pills
2 oz. Cleanse for Life (Isagenix)
1 oz. Ionix Supreme (Isagenix)
I am quite nauseous and sometimes extremely weak in the morning and almost always again at night… I spend a LOT of time throwing up, curled in a ball in severe pain, I’m experiencing random bleeding from my gums, joints not working, extreme hair loss, faint and dizzy spells, almost constant migraines that are very debilitating, etc, etc…. I will share more on all of this and what an average day around the Pratt house looks like in my next post.
If I can leave you with a couple thoughts… DETOX, DETOX, DETOX… It is crucial and I cannot stress it enough. I actually did a lot of research before settling on a treatment plan and decided to start detoxing two days prior to any form of treatment. Do NOT wait to start this, it can be very, very serious and life threatening if you have an overabundance of die off without detoxing thoroughly!
The last and most important thing to remember is that you are NOT alone in this battle… sure there are other people struggling with similar symptoms with Lyme and all these crazy co-infections, but even more than that; God is there. He is right there in the midst of your battle each and every day…
And He said to me, ‘My grace is sufficient for you, for My strength is made perfect in weakness.’ Therefore most gladly I will rather boast in my infirmities, that the power of Christ may rest upon me. 2 Corinthians 12:9 NASB
He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint. Isaiah 40:29-31
Therefore we do not lose heart. Though outwardly we are waisting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. 2 Corinthians 4:16-17
“Be still and know that I am God…” Psalm 46:10
So you shall serve the Lord your God…And I will take sickness away from the midst of you. Exodus 23:25
Prayer Requests:
Please pray for peace for Cory and our three kiddos… (they are witnessing some scary things while caring for me. They are fearful while they watch these scary symptoms take over my body in the evenings.)
Please pray for wisdom in treatment
Pray that these spirochetes are killed and flushed from my body
Pray for direction for our family
Pray for strength for Cory as he is carrying a huge financial and emotional load for all five of us each day.
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His IVs went well, but it was so hard to see him start this battle with me… You know how you’d take all the hurt away from your loved ones if you could? Well, in this case I’ve given it all to them instead. 😩 I cannot go back in time. I can’t dwell in the past. And I cannot beat myself up anymore… Now is the time to move on and count blessings, so that’s where I’m trying to stay each moment of each and every day!
