I’ve finally decided to jump on social media and share some very scary news with you that many doctors won’t. Soooo many doctors will not acknowledge this awful disease, there is no acknowledgement for the severity and seriousness of the symptoms, and you may be labeled as crazy, written off as just another “chronic fatigue” case, or completely dismissed as I have been over and over for the last decade plus.
I decided to start off by sharing a list of my symptoms. This list is extensive, and has been progressing over the last 24 years of my 33 years of life. Although I have been struggling with this for soooo long; the majority of these have become much more intense and some seem to have onset with the birth of my first little one.
Please share this with anyone you know who is dealing with undiagnosed issues, or even those who may have a diagnosis yet still have so many frustrations and unknown answers… I will be sharing much more info very soon, but for now here is my way-too-long-list of symptoms:
Hang in there!
Sincerely, Dani
- Dangerously LOW ferretin levels.
- Headache
- Stiff neck
- Sore throat, swollen glands
- Heightened allergic sensitivities
- Twitching of facial/other muscles
- Jaw pain/stiffness (like TMJ)
- Change in smell, taste
- Upset stomach (nausea, vomiting)
- Unexplained weight gain
- Loss of appetite
- Difficulty breathing
- Night sweats or unexplained chills
- Heart palpitations
- Diminished exercise tolerance
- Heart block, murmur
- Chest pain or rib soreness
- Mood swings, irritability, agitation
- Depression and anxiety
- Malaise
- Overemotional reactions, crying easily
- Disturbed sleep: too little, difficulty falling or staying asleep
- Feeling as though you are losing your mind
- Dementia
- Forgetfulness, memory loss (short or long term)
- Attention deficit problems, distractibility
- Confusion, difficulty thinking
- Difficulty with concentration, reading, spelling
- Disorientation: getting or feeling lost
- Unexplained menstrual pain, irregularity
- Reproduction problems, miscarriage
- Extreme PMS symptoms
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- Double or blurry vision, vision changes
- Oversensitivity to light
- Floaters/spots in the line of sight
- Decreased hearing
- Ringing or buzzing in ears
- Sound sensitivity
- Joint pain, swelling, or stiffness
- Muscle pain or cramps
- Poor muscle coordination, loss of reflexes
- Loss of muscle tone, muscle weakness
- Numbness in body, tingling, pinpricks
- Burning/stabbing sensations in the body
- Weakness or paralysis of limbs
- Tremors or unexplained shaking
- Poor balance, dizziness, difficulty walking
- Increased motion sickness, wooziness
- Lightheadedness, fainting
- Difficulty with multitasking
- Difficulty with organization and planning
- Auditory processing problems
- Word finding problems
- Slowed speed of processing
- Decreased interest in play (children)
- Extreme fatigue, tiredness, exhaustion
- Symptoms seem to change, come and go
- Dysfunction of the thyroid (under active thyroid glands)
- Extreme hair loss
- No new hair growth
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