Monthly Archives: March 2016

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What a day looks like these days…

The start of my day is about the best part…  my sweet hubs wakes me up with my special coffee drink and my first pills at 9am.  These intense bio film busters along with lots of water begin doing the days’ work on the “cystic” forms of spirochetes.  Cysts/ our cells have a bio film encasing each one and unless you can break this down any treatment to kill off these “bugs” is absolutely useless.  I also pulse on and off every five days Artemesinin for the Babesia which is plaguing my body and feeding on my ferretin (a protein in my iron) ((another blog entry all together!))

After I take these, I usually very slowly start to wake up.  Though this does not sound early to most people… this is about two hours earlier than what I was able to do about a month ago.  I don’t sleep sometimes at all at night, so it is a job to move at all most mornings.  This last week after Cory woke me up, I had NO movement in my right arm at all for over two hours, and there are almost new issues each and every day that I am learning are these awful creatures attacking their body part of choice for the day or hour.

One hour after swallowing the “busters” I take my “killer” drops in a small amount of water and pray that it goes to town killing off the spirochetes, if not at least chasing them into their other form and weakening them at least a little…  Here is a brief description of what a spirochete looks like and how it hides, changes:

Borrelia Burgdorferi (Lyme) is capable of transforming into a cyst when it feels its life is threatened. While in cyst form, Borrelia obtains immunity from antibiotics, its host’s immune system, and temperature and PH variations. It can also lower its metabolic rate while in cyst form in order to ward off starvation. When conditions within its host become more favorable, it will transform back into its spirochetal form. A spirochete can also have the added protection of a biofilm if it morphs into a cyst while inside a biofilm.
Don’t confuse the cyst form of Borrelia for skin cysts that are visible to the naked eye. Borrelia Burgdorferi in cyst form exists on a microscopic level and can only be seen with a microscope.”

cyst with biofilm

cyst 2

picture of cyst

spirochete

spirochete

spirochete

Another 15 minutes later I swallow some powerful detox drops in a small amount of water, followed another 15 minutes by bentonite clay, psyllium husk powder pills, a natural thyroid supplement, DHEA supplement, brain support, and my AM Isagenix pills, Ionix shot, a LARGE amount of water, and then about two hours after being woken up, I get to drink my AM protein shake!  I then follow my liquid breakfast with 24 ounces of my greens with some replenish (again… some of my favorite Isagenix products!).  The final part of my morning routine is to follow all of that with at least 24 oz. of water!

I have another shake about 1-2pm for lunch, followed by another batch of greens and replenish, another big water and then I am free until after dinner… FREEDOM!

We eat a very clean and healthy meal for dinner free of any dairy, gluten, corn, or sugar, and minimal fruits if any at all.  This is usually a very weak time of the day for me… but one that I love to sit with my four favorite people and enjoy a recap of our days!!!

Dinner is followed an hour later with basically repeating my morning routine, but here it is just for the record:

2 more “biofilm busters”

40 more drops of the “killer” drops

10 more drops of “detox”

Bentonite Clay in water

5- Psyllium Husk pills

PM Isa pills

2 oz. Cleanse for Life (Isagenix)

1 oz. Ionix Supreme (Isagenix)

I am quite nauseous and sometimes extremely weak in the morning and almost always again at night… I spend a LOT of time throwing up, curled in a ball in severe pain, I’m experiencing random bleeding from my gums, joints not working, extreme hair loss, faint and dizzy spells, almost constant migraines that are very debilitating, etc, etc….  I will share more on all of this and what an average day around the Pratt house looks like in my next post.

If I can leave you with a couple thoughts…  DETOX, DETOX, DETOX… It is crucial and I cannot stress it enough.  I actually did a lot of research before settling on a treatment plan and decided to start detoxing two days prior to any form of treatment.  Do NOT wait to start this, it can be very, very serious and life threatening if you have an overabundance of die off without detoxing thoroughly!

The last and most important thing to remember is that you are NOT alone in this battle… sure there are other people struggling with similar symptoms with Lyme and all these crazy co-infections, but even more than that;  God is there.  He is right there in the midst of your battle each and every day…

And He said to me, ‘My grace is sufficient for you, for My strength is made perfect in weakness.’ Therefore most gladly I will rather boast in my infirmities, that the power of Christ may rest upon me.
2 Corinthians 12:9 NASB

He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.
Isaiah 40:29-31

Therefore we do not lose heart. Though outwardly we are waisting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.
2 Corinthians 4:16-17

“Be still and know that I am God…”
Psalm 46:10

So you shall serve the Lord your God…And I will take sickness away from the midst of you.
Exodus 23:25

Prayer Requests:

Please pray for peace for Cory and our three kiddos… (they are witnessing some scary things while caring for me.  They are fearful while they watch these scary symptoms take over my body in the evenings.)

Please pray for wisdom in treatment

Pray that these spirochetes are killed and flushed from my body

Pray for direction for our family

Pray for strength for Cory as he is carrying a huge financial and emotional load for all five of us each day.

Sincerely, Dani

 

We all need a LITTLE bit of encouragement sometimes…

I’ve been having some rough days since my last post and though I have wanted to share another post… I realized today that my heart simply needed some encouragement!  So, I wanted to share this sweet and powerful saying with all of you in hopes that it would encourage you like it does me every time I walk past it in my home!  I loved it so much, I bought it last year from one of my favorite little shops House of Belonging!

His GRACE is sufficient… I so often add up where I have let my kiddos down, what I wasn’t able to get done in my day, or that I couldn’t get off the couch to make dinner tonight…  but His Grace… it’s always here for me!  I can drop everything I worry about, feel ashamed about, or have doubts about at His feet and let it all go…

2 Corinthians 12:9 says this:  But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.

Stay tuned… I am going to share my treatment plan soon, as well as lots of the reasons behind why I have chosen each piece of the protocol!

When the Mess is Named…

It’s been a long week and I am struggling to make clear enough thoughts as I sit down to type tonight.  After sharing last week about the symptoms I’ve been experiencing, and hearing from many of you with some stories about your own symptoms, I wanted to share some more information.

I’m hoping to share all of this to ultimately bring hope and encouragement to you or someone you know that is battling your own “mess” right now and help you see it as a “beautyfull mess” with eternal hope!

During the last 24 years I have seen countless doctors, specialists, naturopaths, chiropractors, acupuncturists, practitioners, you name it… I’ve likely seen one!  I was diagnosed with mono, EBV, Chronic Fatigue Syndrome, Short Term Memory Loss, Wilson’s Syndrome, Chronic Migranes, Pituitary Cushings, Pernicious Anemia, Crohns Disease, Candida, being Post Menopausal at 28years old, was told I was simply wired backwards, had a doctor say I was CRAZY, I have been turned away from Sleep Clinics two times, finally was seen by a sleep specialist and they said I slept fine, and was told by at least two doctors that they were done seeing me and had nothing they could do to help me.  I have been tested for M.S., ALS, tumors, cancers, auto immune diseases, etc…  I have had crazy long needles inserted into my major muscles and shock waves (I am sure there is a technical term for this) sent through the needles… basically, I was shocked from the inside to run extensive testing on my muscles and nerves.

After ALL of this including years of many trips over the mountains to our Health University, a trip to a world renowned Hormone Specialist in Arizona, tons of trips up north of Seattle to see a Neurolink Practitioner (he helped me some!), and expiring our local options too… the only thing that has ever stuck as a diagnosis (pretty sure this was strictly for insurance purposes… when we used to have insurance) was Chronic Fatigue Syndrome.  Now, don’t get me wrong; I am not saying I am defined by a diagnosis or code at all, however, to receive proper treatment you must know what you are dealing with first.

My husband (Cory), my mom, and myself have long believed that I had Lyme Disease, yet any doctor I would ask here would look me straight in the eye and say this disease didn’t exist on the West Coast. Period.  I was told that even if I did test positively for it, I would not be treated for it by them as they did NOT believe in it… eventually laughing the thought off entirely, they would each move onto more testing, more asking me to tell my story over and over again.

Finally… this year after taking about 16 months off of seeking any help or doing anything to help alleviate these symptoms (we were completely worn out and didn’t feel like there was any fight left in us.), I had a Rolf (structural alignment massage-like technique that proved to help me with my severely tight muscles that aggravated constant migraines.) appointment and the Rolfer told me about her friends practice that had just moved to Bend!  I was trying to be hopeful to look into him, and Cory agreed it was time to get back into seeking help and finding answers.

I have been seeing this new Doctor/ Naturopath and appreciate that he believes that “I am my own best advocate”, He immediately advised me to have a binder of ALL of my test results, notes, etc…  He views myself, Cory, and the Doc as a team and equally listens to our ideas while sharing his own of course.  We have run extensive tests, and I know there are still more to come, however I finally have confirmation of a Chronic Lyme Disease diagnosis along with late stage Babesia, Bartonella, and there will likely be more co-infections found in further testing.

I will be posting treatment options as I walk through this.  I am really struggling as I am midway through my second week of chasing this terrible disease… but I will post as often as I can!

Please share these posts with others… I am excited to help others struggling with Lyme, or other tick born diseases seek help, find answers, and encouragement in the middle of the mess, and ultimately pray for God’s healing!

Sincerely, Dani

Trust in the Lord with all your heart and lean not on your own understanding; in all your ways submit to him, and he will make your paths straight. – Proverbs 3:5-6

I was written off by countless doctors… were you?

I’ve finally decided to jump on social media and share some very scary news with you that many doctors won’t.  Soooo many doctors will not acknowledge this awful disease, there is no acknowledgement for the severity and seriousness of the symptoms, and you may be labeled as crazy, written off as just another “chronic fatigue” case, or completely dismissed as I have been over and over for the last decade plus.

I decided to start off by sharing a list of my symptoms.  This list is extensive, and has been progressing over the last 24 years of my 33 years of life.  Although I have been struggling with this for soooo long; the majority of these have become much more intense and some seem to have onset with the birth of my first little one.

Please share this with anyone you know who is dealing with undiagnosed issues, or even those who may have a diagnosis yet still have so many frustrations and unknown answers… I will be sharing much more info very soon, but for now here is my way-too-long-list of symptoms:

Hang in there!

Sincerely, Dani

  • Dangerously LOW ferretin levels.
  • Headache
  • Stiff neck
  • Sore throat, swollen glands
  • Heightened allergic sensitivities
  • Twitching of facial/other muscles
  • Jaw pain/stiffness (like TMJ)
  • Change in smell, taste
  • Upset stomach (nausea, vomiting)
  • Unexplained weight gain
  • Loss of appetite
  • Difficulty breathing
  • Night sweats or unexplained chills
  • Heart palpitations
  • Diminished exercise tolerance
  • Heart block, murmur
  • Chest pain or rib soreness
  • Mood swings, irritability, agitation
  • Depression and anxiety
  • Malaise
  • Overemotional reactions, crying easily
  • Disturbed sleep:  too little, difficulty falling or staying asleep
  • Feeling as though you are losing your mind
  • Dementia
  • Forgetfulness, memory loss (short or long term)
  • Attention deficit problems, distractibility
  • Confusion, difficulty thinking
  • Difficulty with concentration, reading, spelling
  • Disorientation: getting or feeling lost
  • Unexplained menstrual pain, irregularity
  • Reproduction problems, miscarriage
  • Extreme PMS symptoms

 

 

  • Double or blurry vision, vision changes
  • Oversensitivity to light
  • Floaters/spots in the line of sight
  • Decreased hearing
  • Ringing or buzzing in ears
  • Sound sensitivity
  • Joint pain, swelling, or stiffness
  • Muscle pain or cramps
  • Poor muscle coordination, loss of reflexes
  • Loss of muscle tone, muscle weakness
  • Numbness in body, tingling, pinpricks
  • Burning/stabbing sensations in the body
  • Weakness or paralysis of limbs
  • Tremors or unexplained shaking
  • Poor balance, dizziness, difficulty walking
  • Increased motion sickness, wooziness
  • Lightheadedness, fainting
  • Difficulty with multitasking
  • Difficulty with organization and planning
  • Auditory processing problems
  • Word finding problems
  • Slowed speed of processing
  • Decreased interest in play (children)
  • Extreme fatigue, tiredness, exhaustion
  • Symptoms seem to change, come and go
  • Dysfunction of the thyroid (under active thyroid glands)
  • Extreme hair loss
  • No new hair growth